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Living and Working with Dementia: A Journey of Rights, Resilience, and Hope

Living and Working with Dementia: A Journey of Rights, Resilience, and Hope What would you do if, one ordinary day, you were told your life would never look the same again? For countless people across the United Kingdom, a diagnosis of dementia or Alzheimer’s lands like a bolt from the blue – raising not just […]

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Reflecting on our first Working with Dementia conference

Back in 2013, I started as a research fellow with Professors Pauline Banks, Debbie Tolson and Mike Danson on the study ‘Dementia in the Workplace: the potential for continued employment post diagnosis’. One of my first jobs was to recruit people to take part in stakeholder interviews. Which meant my first job was trying to

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Launch of Working With Dementia Network+ Research Grant Fund

Stay tuned for Expression of Interest opening on 26th March 2026 The Working With Dementia Network Plus will be launching its first Research Grant Funding call on 26th March 2026. The Grant Fund will promote innovative, transdisciplinary research to deepen and broaden the evidence on the topic of dementia and employment, with the ultimate purpose

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When Dementia meets the workplace: Employer Duties

An introduction to understanding your rights and responsibilities – employers Lyndsey Bengtsson, Jill Stavert and Connor McDonald If you’re working with dementia, or employing someone who is, understanding your rights matters. Over 40,000 people under 65 are living with dementia in the UK. Many are still working or want to keep working. With an ageing

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A cartoon of three people looking at a book with an i for information symbol on the cover.

When Dementia meets the workplace: Employee Rights

An introduction to understanding your rights and responsibilities – employees Lyndsey Bengtsson, Jill Stavert and Connor McDonald If you’re working with dementia, or employing someone who is, understanding your rights matters. Over 40,000 people under 65 are living with dementia in the UK. Many are still working or want to keep working. With an ageing

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Inclusive workplaces

How can we model innovative and inclusive employment practices alongside labour markets where everyone is empowered to thrive and contribute?   Presentations by members of DEFIN – Young Dementia, National Dementia Carers Action Network and Michael Cusack, Chief Sustainability Officer at ACS Clothing.     MAQ shared his experience of being diagnosed with frontotemporal dementia while still employed. He made the difficult decision to leave his career

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Economic costs and benefits

What are the economic implications of individuals impacted by dementia at work as well as the wider impacts of working with dementia in society? Presenter: Professor Céu Mateus, Lancaster University    We looked at the figures for life expectancy across different countries for men and women, as well as the numbers of people whose cause of death is listed as dementia.  The worldwide prevalence of dementia is expected to rise in the

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